Reinforce chapter themes with free access to two journal articles for each chapter and further online readings. Select chapters will also include suggested weblinks.
Journal Article 19.1: Creighton, G., Oliffe, J. L., Ferlatte, O., Bottorff, J., Broom, A. and Jenkins, E. K. (2017) ‘Photovoice ethics: Critical reflections from men’s mental health research’, Qualitative Health Research 28(3): 446–55.
Description: As photovoice continues to grow as a method for researching health and illness, there is a need for rigorous discussions about ethical considerations. In this article, we discuss three key ethical issues arising from a recent photovoice study investigating men’s depression and suicide. The first issue, indelible images, details the complexity of consent and copyright when participant-produced photographs are shown at exhibitions and online where they can be copied and disseminated beyond the original scope of the research. The second issue, representation, explores the ethical implications that can arise when participants and others have discordant views about the deceased. The third, vicarious trauma, offers insights into the potential for triggering mental health issues among researchers and viewers of the participant-produced photographs. Through a discussion of these ethical issues, we offer suggestions to guide the work of health researchers who use, or are considering the use of, photovoice.
Journal Article 19.2: Novek, S. and Wilkinson, H. (2017) ‘Safe and inclusive research practices for qualitative research involving people with dementia: A review of key issues and strategies’, Dementia 0(0): 1-18.
Description: Developing strategies to ensure the safe participation of people with dementia in research is critical to support their wider inclusion in research and to advance knowledge in the areas of dementia policy and practice. This literature review synthesizes and critically appraises different approaches to promote the safe participation of people with dementia in qualitative research. Two databases were searched for articles that discuss the methodological or ethical aspects of qualitative research involving people with dementia. We did not focus on informed consent or ethical review processes as these have been reviewed elsewhere. Key issues that impact participant safety include: language, gatekeepers, the research relationship, communication, dealing with distress, knowledge dissemination, and researcher skills. By synthesizing different approaches to safety and highlighting areas of debate, we hope to advance discussion and to contribute to the development of inclusive research methods.